anonymisation / big data / Data protection / General Data Protection Regulation / ICO / Personal data / Privacy / pseudonymisation / research / Risk-based approach / sensitive data

The First-Tier Tribunal and the anonymisation of clinical trial data: a reasoned expression of Englishness…. which would have to be abandoned with the GDPR?

The Queen Mary University of London v (1) The Information Commissioner and (2) Alem Matthees, EA/2015/0269 case decided by the First-Tier Tribunal (Information Rights) (FTT(IR)) on 12 August 2016 is a fascinating decision. [Could it be a stylish expression of Englishness…. or otherness?] The case-facts concern a freedom of information request for clinical trial patient data … Continue reading

anonymisation / big data / Data protection / General Data Protection Regulation / Personal data / pseudonymisation / research / sensitive data

What does the agreed version of the GDPR say about processing personal data for research purposes? Is the GDPR better than the Directive?

What does the agreed version of the GDPR say about processing personal data for research purposes? Is the GDPD better than the Directive? So here we are. It’s almost Christmas and after three years of intense debate the Council of the European Union and the European Parliament have announced that they have informally agreed on … Continue reading